hypatia42: (Default)
Update on the radon mitigation: we found out last week that the original system they put in place didn't bring the radon down below "acceptable" levels. So, in addition to the noise problem, it still didn't do what it was supposed to do. They came back out today to see if they could fix it.
They added more insulation to the basement to muffle the mosquito whine in the large crawlspace. They switched out the fan for a quieter one. They added a rubber bushing between the pipe and where it attaches to the house. Then lastly they added a rubber collar instead of the hard plastic one at each end of the connection to the fan housing.

These measures reduced the noise by roughly one third. I believe this to be insufficient. I was told they had done everything there was to be done and that it was far beyond industry standards for noise reduction. "I can't hear anything. Are you sure its not the air conditioner?" No kind sir, you may not gaslight me. If you can't hear bats and dog whistles, tvs and security systems I suggest you not try to tell me what I am and am not hearing. He said he would have to talk to the owner and see what else could be done.

After they left Michael and I went out to inspect and see if there was anything else we could think of. Michael noticed that the clamps holding the electrical conduit to the house are not muffled so we detached that from the house to see if it affected the noise level. Definite difference. Brought it down probably another third. Its possible that will be tolerable but the real test will be sitting on the couch with the fan behind my head for a while to see if it is truly tolerable.

Lesson here: do not try to gaslight me.
hypatia42: (Default)
Last week I learned something about the surgery recovery process that even the doctor didn't tell me. I had to hear it from my stylist. Turns out anesthesia meds make your hair fall out. Not sure at what rate or really anything else but it's good to have a warning.
hypatia42: (Default)
My Sx post-op took a strange U-turn and I ended up back in urgent care + hospital for imaging on my arm. Superficial thrombophlebitis is a bitch but it doesn't generally come with complications. FTR, R distal lateral vein of the forearm has a clot in it due to the damage caused by the IV. Heat packing it =/>4x daily for at least 20 minutes and regular ibuprofen is the current treatment. If it doesn't improve, I get to talk to a hematologist.

The pain in my abdomen isn't as well controlled as I would like it to be. They tell me that's from the EDS complications. With everything super stretchy, it's harder to heal. #zebralife
hypatia42: (Default)
Because I want to remember this:

Hey love - I know you're having a heck of a time right now, but I wanted to send you a note while I was thinking of it. I really appreciate how freely you share really important insights and lessons about how people can love themselves and one another better. I heard your voice as clear as day in my head when called upon to remind someone that their "yes" is meaningless if they can't own their "no", too. Thank you for being a wonderful example of healthy boundaries. 💛💛💛

Sent to me via PM from a friend

Recovery

Jul. 13th, 2021 12:42 am
hypatia42: (Default)
Monday, 4 days post emergency appendectomy and today felt like a turn for the better. I'm in less pain and I am able to move around a bit better. Less pain meds were required. I feel a lot like all I've done for the past 4 days is sleep. Speaking of, I should go do that.

Sunny Lane

Jul. 11th, 2021 11:34 pm
hypatia42: (Default)
In and amongst all the GI issues I have had this week, we did hear that they accepted our offer and had to do the whole inspection thing. That happened on Tuesday and nothing big or expensive showed up that day, not that we expected it to. A few small things that they agreed to fix. The radon test on the other hand... that came back High and they don't want to have to deal with it because "they won't benefit from it" which we all think is bullshit. Unfortunately I'm this housing market they can pull that. Lots of places are going sight unseen and no inspection at all.

We got them to agree to an in person estimate for remediation since the one they did online came back with a spread of $1850-$3450 which is too wide for my comfort. We'll see what that comes back with. Ultimately, we will end up paying for whatever it is cause, see the current market, we don't have much choice and we really do like the house.
hypatia42: (hugs)
Turns out I had a whole organ trying to kill me. One of the "fun" things about getting a medical zebra, EDS edition, is that the classical symptom presentation is often lacking due, ostensibly, to elasticity of connective tissue. This means when you call the nurse line with X symptoms they don't have any reason to think you might have an organ trying to go kill you. Now, had the nurse on said nurse line asked a few more questions she might have had the same puzzled look and desire for more answers than the urgent care could provide that the urgent care doc did. Luckily he did and sent me for acute diagnostic care where I got blood work, a urinalysis (kindly not a pregnancy test thank you), IV toradol, and a bag of fluids. I would havev gotten a CT that day but another medical zebra condition, MCAS, means I'm sensitive to contrast. So I got sent home with Prednisone and orders to come back the next day.

The next day, it took another 4 sucks to get an IV placed. Everyone was looking at me in sympathy. A bloody hour it took!!! Then CTv and wait for results. Doc sucks her head in the door and says, "It's your appendix. You're going to the ER." Excuse?!! This does not fit into my plans. Can I say least leave the IV in drive I'm pretty sure there aren't any others in my arms that haven't been stuck in the past 24 hours??

So that's the story of how I got emergency surgery for the removal of a vestigial organ that decided to wage war on the rest of my body. I presented with atypical symptoms, upper middle GI pain, none in the lower right quadrant. Oh and the CT results showed my uterus as "unremarkable" despite being missing...

GI issues

Jul. 7th, 2021 11:54 pm
hypatia42: (Default)
After over 48 hours of no decrease in Sx, vomiting all night Sunday night, and waking up with diarrhea today I figured going in to see someone was a good plan. Urgent Care sent me to Acute and Diagnostic care. They did good and urine tests. Both came back normal. Tomorrow I get a CT with contrast. Joy. That means right and tomorrow morning I get Prednisone...
hypatia42: (Default)
We put in an offer for the Sunny house last night. They have an open house today. I'm hoping that everyone who decided to go finds another place that suits them perfectly so they don't even need to continue thinking about this one.
hypatia42: (Default)
Woke up this morning at 5am with my brain in a hamster wheel. This means I got less than 4 hours of sleep. Last night my brain was in a hamster wheel too. We saw a house we want to put an offer on. There are so many more moving parts when you are buying a house and already own one. It's a little terrifying. But the place is lovely and just about perfect for what we need. It's also located on Sunny Lane. How perfect is that for me?!?
hypatia42: (Default)
I think I mentioned that Mondays and Tuesdays are for doctors appointments. Today was pulmonology. Last year and this year I have struggled to keep my O2 stats above 95 in the spring. My PC didn't know how to help so she referred me out. Naturally, the appointment was 3 months out when I was no longer struggling.

They did a couple of x-rays and multiple lung function tests. I was sore when I went in. By the time I left I was in full flare. I've been a lump ever since. The friend who told me I have MCAS for 5 years before I got diagnosed tells me there is a protocol for pre-dosing to help prevent the flare. I don't know what it was that caused it so I'm not sure how I should have known to pre-dose. Ugh.

At least I have a couple of action items from today. One is get an active O2 test done. It's a 6 minute walk with constant oxygen saturation monitoring. If it goes below 88%, insurance will cover oxygen at home. I don't expect that to be the case and neither does the doc but having the baseline test isn't a bad idea. The second is pulmonary rehabilitation therapy. It's 12 weeks of muscle and stamina building under the care of people who will watch for pulmonary distress. I'm to start that at the end of July.
hypatia42: (hugs)
What a fucking pain. I'm sure everyone thinks that of their physical therapy journey. Finding a therapist who can work with EDS and not exacerbate it is a huge challenge. Then when you do find someone the process itself is like stretching an old rubber band. If you do it carefully and warm up slowly you're okay. If you go to hard or too fast; snap, flare, start over next week. The thing is, I never really know how old the rubber band is today.
hypatia42: (Default)
Well, I can't say I have done a while lot of house hunting in my time but I've done some. I never had a house feel so plastic and creep me out in the way one of the ones we saw yesterday did. Built in the early 90's and never updated. The carpet was still that horrible mottled gray, pink, blue that was so popular as a pattern back then. The brass and glass fixtures were all still there. The bathrooms were all the hard plastic fake marble. The Honey thinks I was creeped out because it felt like mom's ex's house.
hypatia42: (pic#245179)
We are prepping for finding a new place with less stairs and less maintenance and hopefully less noise. The past year has been hell on my hypervigilance issues. How does one figure out what you won't need for the unknown future? Its making me a little nuts.

I also started back to work a the beginning of June. I am loving it really. The people I work with are lovely. Its a small team but we are all dedicated to making it work. I work 18 hours a week. After 15 months of being unemployed and stressed beyond belief, getting used to working again has been difficult. My hours are offset by one hour earlier from my previous schedule and that is proving harder to adapt to than I expected.

The work transition on its own would be hard enough but having to pack up house while physically and mentally exhausted? Yeah. No bueno. Monday and Tuesday are my see the doctor and the physical therapist days so its not like I have those as down days to get things done.

Chronic illness affects far more of my life than I like to admit. *sigh*
hypatia42: (Default)
7 Lovely Logics

1. Make peace with your past so it doesn't poison your present.
2. What others think of you is none of your business. Remember that it says more about them than it does about you.
3. Time heals almost everything. Give time some time to do its work. Its worth it. "Time takes time" as my physical therapist says.
4. No one is the reason for your happiness. You alone are in charge of that. It is rather liberating once you own it!
5. Don't compare your life to others. You have no idea what their journey is all about or where they are at in it. Comparison is the thief of joy and all that.
6. Don't think too much. Its easy to get mired in what ifs but they rarely help much. Its okay to not have all of the answers.
7. Smile. Relax. Breathe. While we each have to do our part, no one owns all of the problems in the world.
hypatia42: (Default)
This is something She gave me a long time ago. Its kinda like a primer for applying the PoP Love to one's self.

Words from Aphrodite:
You are Worthy
You are Worth It
You Deserve It


How I have interpreted these words over the years:
-You are Worthy. You were born. You exist. Therefore you Are Worthy. Your worthiness is not tied to your appearance, your acceptability, or your productivity. You Are and therefore you Are Worthy.
-You are Worth It. All of the work and effort it takes to become the best you you can be is Worth It. Every second of time it takes to get to know you and be in healthy relationship with you is Worth It. Know it. Act like it. That belief will translate itself throughout the rest of your life.
-You Deserve It. Believe that too. But it means you have to act and be deserving. Don't confuse it with entitled. Those who are deserving have worked hard to get there.
hypatia42: (Neon eyes)
I have been told by my Rheum people that taking 6 months off is likely the best way to see if my body will heal. This is full of feels. Super complicated feels. Parfait.
hypatia42: (Default)
I got the information on the 3rd that my cousin in Dallas had passed. According to my mom they were going to be planning the funeral sometime in the next week. We drove to KC on the 4th. The 5th was supposed to be going to Oceans of Fun but the Honey had been having sinus trouble so rather than go there we agreed to sleep in and go to a pool complex in Independence instead since it cost all of $9 to get in and still had the lazy river he was looking forward to. Sleeping in happened. My back sized up after breakfast so I laid down with an ice pack to rest.

I woke to a text from my mom about the funeral being on the 7th and it was too soon and too far and it didn't make sense to try to go. I called her to find out how she really felt and bullied her into admitting that she really did want to go but wasn't confident that she would be able to make it on her own. It ended up being the Honey, Sis, my mom, and me all in a rental car driving from KC to Dallas. 939 miles one way from Minneapolis to Dallas. 5 days total. I met family I haven't seen since I was very small. Overall it was a good visit.

2 days after I got home I got a message that a dear friend, [personal profile] willowoak, had collapsed on the way out of work and they were unable to revive her. She had no will and no documents detailing what do with her and her things. The Honey and I will be working on that soon. You just never know what is gonna happen. One day you could think you are fine and the next you could have a previously unknown cancerous ovarian cyst burst and the trauma of it just might stop your heart.

Ever since then we have been dealing with her effects and preparing for the memorial. It is set for this coming Saturday. Its weird cause I probably spent more time with her over the past 10 years than anyone else in our trad and now I feel a bit adrift. We will all manage but it has definitely rocked the community here. #fuckcancer

4th of July

Jul. 4th, 2018 12:04 pm
hypatia42: (Default)
Today I am driving to KC. Not for anything fun per se. Its for surgery prep with mom. I'm gonna be staying at her house for about a week I think after her surgery on the 23rd. Dunno how I am going to physically handle being 24 hour nurse care for someone who can't move well. Needta make sure I am doing my exercises for sure. Mebbe take a Pilates mat and a video?

We are gonna go to Oceans of Fun tomorrow. Looking forward to the time in the sun. There had better be sun.

Profile

hypatia42: (Default)
hypatia42

October 2021

S M T W T F S
     12
3456789
10 111213141516
17181920212223
24252627282930
31      

Syndicate

RSS Atom

Most Popular Tags

Style Credit

Expand Cut Tags

No cut tags
Powered by Dreamwidth Studios