Pulmonology
Jun. 29th, 2021 11:09 pm![[personal profile]](https://www.dreamwidth.org/img/silk/identity/user.png)
I think I mentioned that Mondays and Tuesdays are for doctors appointments. Today was pulmonology. Last year and this year I have struggled to keep my O2 stats above 95 in the spring. My PC didn't know how to help so she referred me out. Naturally, the appointment was 3 months out when I was no longer struggling.
They did a couple of x-rays and multiple lung function tests. I was sore when I went in. By the time I left I was in full flare. I've been a lump ever since. The friend who told me I have MCAS for 5 years before I got diagnosed tells me there is a protocol for pre-dosing to help prevent the flare. I don't know what it was that caused it so I'm not sure how I should have known to pre-dose. Ugh.
At least I have a couple of action items from today. One is get an active O2 test done. It's a 6 minute walk with constant oxygen saturation monitoring. If it goes below 88%, insurance will cover oxygen at home. I don't expect that to be the case and neither does the doc but having the baseline test isn't a bad idea. The second is pulmonary rehabilitation therapy. It's 12 weeks of muscle and stamina building under the care of people who will watch for pulmonary distress. I'm to start that at the end of July.
They did a couple of x-rays and multiple lung function tests. I was sore when I went in. By the time I left I was in full flare. I've been a lump ever since. The friend who told me I have MCAS for 5 years before I got diagnosed tells me there is a protocol for pre-dosing to help prevent the flare. I don't know what it was that caused it so I'm not sure how I should have known to pre-dose. Ugh.
At least I have a couple of action items from today. One is get an active O2 test done. It's a 6 minute walk with constant oxygen saturation monitoring. If it goes below 88%, insurance will cover oxygen at home. I don't expect that to be the case and neither does the doc but having the baseline test isn't a bad idea. The second is pulmonary rehabilitation therapy. It's 12 weeks of muscle and stamina building under the care of people who will watch for pulmonary distress. I'm to start that at the end of July.